Today our niece, BryAnna, has had one of her greatest wishes come true . . . she left Riley Hospital without her trach for the first time in her life. For the first time she will breathe through her nose and mouth, rather than a tube inserted into her throat. After 10 years of wishing, hoping and waiting BryAnna can now enjoy what most of us daily take for granted. Bry has endured a couple dozen surgeries in her short time, and done so with an immense amount of sass and spunk. She has Treacher Collins Syndrome. But I hesitate to leave that as such a simple statement, because I don't want her to be defined by her syndrome, by her limitations. She is so much more beyond that. And she has constantly fought to not allow those limitations to control her. Today she won . . . for those of us who are her family and friends, we all won. But today has been preceded by many other days -- some won, some lost, some neither won nor lost, but were the in-between spaces where we j
A blog for old souls and childlike spirits.
Emily, thank you so much for coming by Unconventionally Beautiful and for your kind words. It's so nice to know that someone with the kind of beautiful mind that you have (so well shown on your blog) enjoys mine as well!
ReplyDeleteCome back soon!
Sam
SamanthaShorey.blogspot.com
Sam,
ReplyDeleteThank you so much for your comment . . . it means a lot to me to have anything that I write well-received. It's always exciting to come across another person who views things from a unique perspective. Your blog is so well done and simply fresh. I will definitely be back!